Supporting Epilepsy Awareness: My Full-Time Career as a Mum and Advocate

Wednesday 10th Jun

People often ask me what I do for work, and my answer is simple: I advocate for epilepsy awareness and care for my son full time.

While it may not be a traditional career with an office, a uniform, or a pay cheque, it is the most important role I will ever have. Every day revolves around ensuring my son is safe, supported, and able to live the fullest life possible while navigating the challenges that epilepsy brings.

Living with epilepsy doesn’t just affect the person having seizures—it impacts the entire family. There are medications to manage, appointments to attend, warning signs to watch for, and constant planning to make sure everyday activities can be enjoyed as safely as possible. There are sleepless nights, moments of fear, and times where uncertainty can feel overwhelming.

But there is also strength, resilience, and hope.

My journey has inspired me to become an advocate for epilepsy awareness. I believe education saves lives. The more people understand epilepsy, the more compassion, support, and acceptance those living with the condition will receive.

I use every opportunity I can to spread awareness through community events, fundraising, social media, and conversations with others. Whether it’s organising car meets that raise money for epilepsy organisations or simply sharing our family’s story, every conversation helps break down misconceptions surrounding epilepsy.

Advocacy has become my full-time career because I know firsthand how important awareness is. I want families to know they are not alone. I want children living with epilepsy to feel accepted and understood. I want the community to know what to do if someone has a seizure and to recognise that epilepsy is often an invisible disability.

My son has taught me more about courage than I ever thought possible. Every challenge he faces reminds me why I continue to speak up.

Supporting epilepsy awareness isn’t just something I do—it’s who I am. It has become my purpose, my passion, and my way of helping create a world where people living with epilepsy are met with understanding instead of stigma.

If sharing our story helps even one person recognise a seizure, support a family in need, or feel less alone, then every effort is worth it.

Together, through awareness, education, and compassion, we can make a difference.

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