Login
Login

Fraser Caddy

Purple

Fraser Dravet Warrior

Please support me as I continue my journey with Dravet Syndome.
Last year I had 82 seizures, an average of 1 every 4.5 days. Mostly tonic clonic. These happen when I’m too hot with exercise or illness, too excited, or could be from sleeping or have no trigger. It’s hard to make gains when my head keeps rebooting.
I have been lucky enough to access 2 new medicines last year, but neither have kept me as safe as I’d hoped for and I’m not sure what to do next 😢.
Like 30% of epilepsy cases, mine is sadly uncontrolled and changes the way I live and play every day in comparison to my peers.
I hope to raise funds for more research, better treatments, and ultimately a cure!
Please help me make March purple for Epilepsy
💜 Fraser 

Please Help Me
Reach My Goal

Raised

$3,643

My Goal

$1,000

Select amount to donate

$25
$50
$75
$100
$
Donate

Guaranteed safe & secure donation

My Updates

Thank you!!!

Monday 3rd Apr
Thank you so much for your generosity. You helped our little Fraser raise $3,461.00 for the Epilepsy Foundation.
Epilepsy does not get anywhere near the government funding of other conditions, so your support really does make a difference!

This month the research Fraser was involved in was abruptly cut short and we are in the dark about whether the genetic treatment they are working on will be researched in Australia. We had been involved in this lifestyle study for 18months hoping for the option to be included in the next stage. It was hard on Fraser. Extra blood tests and days of motor and cognitive tests which all seamed a bit mean at times.
At the moment we are happy that Fraser’s new treatment Fenfluramine has given him some seizure relief. He meets with neurology in 2 weeks to work out what is next.  As always I’ve got a few ideas. I’m pretty much thinking about it all the time.
 
Anyway, thank you again. We really value your support of us as well as this cause.

Fraser, Renae and Lochy XX


Thank you to my Sponsors

$1.02k

James Caddy

Love from all the NSW Caddy’s, hoping all goes well. Please keep us informed.

$250

Fraser Caddy

$250

Nan And Pa

$200

Paul And Jennifer Taylor

Love to you all.

$158.25

Bree, Gray, Isaac And Miles

$105.50

Mr Collins Florist

$105.50

Heath And Jewelz

$105.50

Elyse, Josh, Frankie & Juno Xx

$105.50

Zoey

You're a superstar Fraser!

$105.50

Mikayla Amos

From one Dravet Warrior to another keep fighting buddy! Let’s help find a cure!

$100

Tyrikos Family

Love you Fraser 💙

$75

Richard, Mandy, Grace, Emily And James

$70

Uncle Dale & Auntie Simone

You're a champ Fraser, keep smiling!

$52.75

Mike& Debbie Kelly

Xavier’s Nanny and Poppy wishing for more seizure free days for brave Fraser. 💜💜

$52.75

Kelly Hicks

Good luck Tash & family :)

$52.75

Gemma Duffy

For another brave little kid. Hoping brighter days are ahead for you xxx

$52.75

Mandy Grinberg

$52.75

Aunty Ro

My little legend ❤️

$52.75

Nadeen Cote

$52.75

Lachlan Taylor

Sending my love X

$52.75

Gaynor Taylor

Big love to Fraser, Renae and Lachie. xx

$52.75

Xavier Carlin

Here’s to more seizure free days for both of us 💜

$52.75

Rachael Wake

Best wishes, keep fighting xx

$52.75

Irene Webb

Fraser keep sharing your beautiful smile buddy. Hugs 🤗 to you and your Mumma and Pappa

$52.75

Gemma, Luke, Keira & Jake X

$50

Aunty Loris

$50

Philippa Heir

$26.38

Andrea Gaddie

Think of you lots when i see your updates on facebook. Your resilience is very inspiring. Take care. Xo

$26.38

Justine Deneehy

Sorry it couldn’t be more just now… No correlation to how much we love you all!

$26.38

Sandra Scarfe

Thinking of you all xxx

$26.38

Jess Thomas

$26.38

Chris Chua

Keep Fighting! Praying for your family and you!

$26.38

Denise Tucket

$26.38

Pip Losper

$26.38

Norah Kenny

Lots of love to Fraser and Renae x

$25

Christine G

Wishing you all the very best.

$12.66

Anonymous

$10.55

Lily Fagioli

Such a warrior Fraser! All the best