Rene Gerakinis

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My Activity Tracking

105
kms

My target 75 kms

I want to raise money and make a difference for people living with epilepsy. Please help me by giving whatever you can using the 'Give Now' button. The more people that know about the walk, the greater the impact, so please also spread the word by sharing our page with your friends and family. Thank you in advance for your generosity, it means a lot!

My Achievements

First donation

50% of Fundraising Goals Badge

75% of Fundraising Goals Badge

100% of Fundraising Goals Badge

Logged first KM

50% Distance Target

100% Distance Target

Shared page

Added blog post

My Updates

Why am I doing this??

Tuesday 15th Sep

This year I’ve decided to take part in the walk for epilepsy.

Some of you may know, I am epileptic, I was diagnosed at 13! We thought I’d grow out of it, but it likes me too much so it’s here to stay.

There are many different types of epilepsy but the specific type I have is called idiopathic photosensitive occipital lobe epilepsy.

We never really hear too much about this disorder which is surprising considering 1 in 25 people have epilepsy.

It’s estimated that 70% of people with epilepsy can live seizure free if properly diagnosed and treated (amazing)

However the risk of premature death in people with epilepsy is three times higher than for the general population.

I’m not here to tell you my story, it’s a private, lengthy and sometimes very debilitating over the years, however I now fall into the 70% that live seizure free with no side affects from their medication!!! Woohooo only took us 9 years!

I am one of the lucky ones, epilepsy affects every individual in different ways, it affects their occupation, most individuals need their environment adapted in their homes, and it affects us socially.

As a teenager I think the social aspect of this disorder affected me the most.

In the month of October there is a walk with epilepsy from the 1st-25th of October please join my team and walk with me!!

I’ll be walking 2km a day and on the 24th of October I’ll be walking from greenvale to Essendon and clocking 25km

Help me spread the word on this disorder, they need us too, this isn’t spoken about enough!!

Thank you to my Sponsors

$1.52k

Anonymous

$515

Elite Eleven

$250

Helen Gerakinis

Always by your side ....being kind & caring requires courage and strength ..... you’re amazing ....luv mumma & papa

$104.40

Paulina Bitolas

Love youuuuu

$104.40

Taki’s Bakery

Get it girl!!

$104.40

Daniel Ryan

Good luck Rene, wells done!

$104.40

Irene Diakos

Luv you always & good luck Ειρήνη μου .... yiayia xxx

$104.40

Chris Doube

Awesome Rene, best of luck with the big walk!

$104.40

Harri Rocke

G luck legend

$104.40

Jordan Rogers

Onya ne ne ❤️

$104.40

Anonymous

$104.40

Melinda Ellis

You go girl! 💜💜💜

$100

Suzanne Del-re

Good Luck Miss G.G. on team Rene in raising money for such a great cause and awareness with Epilepsy. Go Team Rene !!!!

$100

Andrew Fraser

Thank you for sharing your story, Rene. Good luck with the big walk!

$78.30

Jake & Molly

You go girl 💕

$52.20

Melbourne Arancini

Go team Nae !

$52.20

Jo Catalano

❤️

$52.20

Marc & Helen

Go Team Nae!!! Love you cuz xxxx

$52.20

Tayla Brozic

I love you so much Rene. I’m so proud of you and everything that you’ve achieved throughout your lifetime with you epilepsy. You’re gorgeous inside and out. 😘😘