My Activity Tracking
My target 50 kms
I’m taking part in Walk for Epilepsy around Australia because...
I want to raise money and make a difference for people living with epilepsy. Please help me by giving whatever you can using the 'Give Now' button. The more people that know about the walk, the greater the impact, so please also spread the word by sharing our page with your friends and family. Thank you in advance for your generosity, it means a lot!
50% of Fundraising Goals Badge
75% of Fundraising Goals Badge
100% of Fundraising Goals Badge
Logged first KM
50% Distance Target
100% Distance Target
Added blog post
3 days left!Friday 23rd Oct
One of the Lucky OnesMonday 12th Oct
Most of my life experiences has been much for muchness to that of the next person, epilepsy hasn’t really stopped me from living out my dreams. Yes, there have circumstances where I had to lean on the side of caution, or mange things slightly differently. Yes, there have been pharmaceutical side effects, pregnancy considerations, harder and more difficult complications when it comes to stress, fatigue and hormones (my main triggers). I suffer from bad days because of my epilepsy, we all suffer from bad days for different reasons. But really, I can care for myself and my children without supervision and that’s the main thing. At the moment (and maybe forever), I am unable to drive due to recent seizures (25 + years tonic clonic free until last year). I have to giggle though, I never really cared for driving anyway. It is inconvenient with two children, not to drive, but there are different ways to jump life’s hurdles.
Here’s the thing, having a form of epilepsy that isn’t intensive as some fellow epileptics, I know I have a lot to be grateful for. There are those whose journey with epilepsy has been very difficult. They are strongly reliant on others for assistance, and in many ways, it has defined their day to day life. Variations of epilepsy are everywhere, and each persons path and symptoms are different. I am Walking for Epilepsy to raise awareness for the degrees of suffering of the 1 in 25 diagnosed Australia wide. For those who suffer from tonic clonic / grand mal, daily or weekly. For those who have sleep seizures. For those who have petit mal and blank out a few seconds at a time. For those who suffer physical or mental injuries post seizures. For those women who know their monthly cycle brings more than just cramps. For those children who feel ostracised because the other kids think they’re weird. For the parents of epileptic children who feel their kids pain. Or for someone like me, who hears “I couldn’t tell you had epilepsy, you don’t look like one”, and left to think how grateful I am that I am functioning, and how much more we need to educate and bring awareness so that epilepsy hasn’t got a defined state or “look”. Epilepsy is a common condition, and every person who is diagnosed with it, most importantly, is recognised as a person. Everyone needs help from time to time, and just like epileptics, no one should go through a difficult time alone. Share
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